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From:
rsd1999
To:
lamesabackcomfort
6 of 6
3/25/09
I have lived with RSD for ten years now. It all started with an injury to my knee. The physician who repaired my knee referred me to a pain specialist. After meeting this physician I started with treatment that same week. The treatment that I was receiving was LSB's(Lumbar Sympathetic Nerve Block's). These would help with my pain for about 8-10 hours at first. Then eventually they only worked for 2-4 hours. I then stopped having these and just tried to tolerate the pain. As well as having the blocks I was also on a lot of medication. I really did not like the affects of the medication but since it was helping, I was taking it. The final straw for me to not taking any more medication was what happened: I was with my husband and two young sons. My youngest had to use the restroom and so my husband took him so that I could place our order. By the time he came back, I still had not ordered. Why? Because I could not find the words to order - I did not remember what I had to do! This was becoming a very frequent event. So, my husband talked with me about this and then we went to the pain specialist that I had been seeing. He had to wean me off the medication that I was on. This took about two months. At this point, we started looking into other ways of treating my pain. I tried acupuncture - for me it was not very effective. So, we went back to PT and I used a TENS unit as well that the physical therapist had prescribed. During this time, I was told that there was not much else that could be done for me other than having a spinal cord stimulator placed. I did go for further evaluation to see how severe my RSD was. It was determined that it was very severe and I was told that if I ever fall into a cold/frozen river or lake, I would not survive. The only option that I was given, was to have the spinal cord stimulator. My husband and I went home. After this appointment, we gave it much consideration. The decision was that I would have the stimulator placed. Now, the first step was to do a trial stimulator to see if this is something that would work. Well, the result was phenomenal! I had not been able to walk hardly and after the trial was placed, I went and walked the mall. The following day, I walked several blocks. I could not believe it! My pain was so minimal! I called the physicians office and told them that I needed to have this actually done permanently. It was about three months later that I had the permanent stimulator placed. It has been a life saver for me. Without it, I would have been in a wheelchair by now. Do not give up! There is help out there!
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